There is SO much information out there about PANS/ PANDAS, and it can be overwhelming to even know where to start!
We have compiled a list of some of the most useful resources that have helped us along this journey.
PANDAS Network and ASPIRE
Pandas Network and Aspire are two US based Not for Profit Organisations that have a wealth of knowledge for families. You can find their websites below:
PANDAS Network: http://www.pandasnetwork.org
Child Mind Institute
The Child Mind Institute is an independent, nonprofit dedicated to transforming the lives of children and families struggling with mental health and learning disorders. They have a very informative article about PANS/ PANDAS that explains how to recognise PANS/ PANDAS, how it is diagnosed, and what the recommended treatments are. You can read this article here. They also have a brilliant article that talks about how to recognise OCD in the classroom. OCD can be a tricky one to spot (top tip: it’s not all hand washing!!), and this article helps you know what to look for. You can read this article here.
Dr Leila Masson – Blog and Podcast
Dr Leila Masson is a consultant paediatrician who specialises in nutritional and environmental medicine for children’s health issues. She has a private clinic in the eastern suburbs of Sydney and is a wealth of knowledge in all things PANS/ PANDAS. She recorded a very informative podcast about PANS/ PANDAS that you can listen to here. She has also written a blog about PANS/ PANDAS and you can read this here.
Knowledge is power. Information is liberating. Education is the premise of progress, in every society, in every family.Kofi Annan